Focus Statement: Breadth

Breadth is the portion of the registry operations covered by the effort. It can be stated in terms of processes, activities, functions and/or organizational units.

Breadth: Registry Operations

From: Diagnosis of cancer recorded on any source document

To: Edited final consolidated records on the master file, and then data submission

Including:

• Matching/Linkage
• Follow-up/Follow-back
• Editing
• Record consolidation
• Quality control
• Rapid case ascertainment
• Case finding, including electronic path reports
• File extraction for various purposes
• Importing data from various record types (for example: death certificates, vital statistics data, census data, etc.) in various formats
• Ad hoc reporting
• Abstracting
• Data security
• Tracking
• Co-morbid conditions (provide a place in the model for this, although it will be difficult for the registries to capture this information)
• Genetic and tumor characteristic (e.g. estrogen receptor positive) information
• Accommodation for special studies --- Although this solution will not provide functionality to meet all needs, it:
  • Will select patient sets/records to be included in a special study
  • Will accept updated research information from a special study and consolidate this into the database
  • Will track patients who have been contacted for a special study
  • Will NOT support the process of contacting the patient, doing research, etc….the "legwork" of conducting the special study

Excluding:

• Administrative activities (payroll, purchasing, …)
• Registry professional affiliations (for example research groups, etc.)